Debated in Parliament on 22 Nov 2023.
Mr Ong Hua Han asked the Minister for Health (a) how many applications has the Rare Diseases Fund (RDF) received since November 2022; (b) how many RDF applications in this period sought funding for non-listed medications; (c) how many RDF applications in this period have been successful; and (d) whether annual reports on the RDF highlighting the number of applications received and the financial status of the fund can be published.
Mr Ong Hua Han asked the Minister for Health (a) how are donors to the Rare Diseases Fund (RDF) being informed that they have the option of specifying that the principal sum of their donations can be drawn down for Cell, Tissue and Gene Therapy Products (CTGTPs); and (b) whether these donors can be informed on what constitutes the expendable component of the RDF as stated in the RDF donation form.
These questions have been addressed in my oral reply to Question No 10 on the Order Paper for 22 November 2023. [Please refer to "Inclusion of Risdiplam in Rare Diseases Fund to Treat Spinal Muscular Atrophy", Official Report, 22 November 2023, Vol 95, Issue 117, Oral Answers to Questions section.]
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